Hello friends!

I have something pretty wild to share with you today.

To remind you, I have a rare cancer called Alveolar Soft Part Sarcoma (ASPS). I was diagnosed at 18 with the primary tumor in my left arm. Since then, the cancer has spread to many spots in my lungs, my liver, my adrenal gland, the back of my neck, my thigh, my right femur, and my left humerus.

Over the years I’ve had two surgeries to remove tumours. I’ve tried five systemic therapy medications with no benefit. I’ve received radiation treatment to 5 tumor sites to slow down aggressive metastases. After all of that, the cancer kept growing and showing up in new parts of my body.

For the first time since being diagnosed 17 years ago (nearly half my life), I am seeing cancer shrink! This is thanks to the immunotherapy treatment that you’ve all helped me get.

• The metastases in my lungs are 10%-50% smaller across the board.
• The metastasis in my liver is 20% smaller.
• The metastasis in my adrenal gland is 70% smaller.
• The metastasis on the back of my neck is at least 70% smaller and showing a characteristic change into healing tissue.
• The bone metastases I have in my femur and humerus seem stable.
• There are no new or worsening metastases noted.

These are amazing results for only three months of treatments. This gives me a huge amount of hope that one day I will conquer this disease.

The path forward is clear. This treatment is working, and I need to continue it.

To date we’ve spent $57,506.35 on the medication alone. The cost of the treatment went up because the pharmacy is covering less of the cost than they initially said they would.

Since I have compelling evidence that the treatment is working, I am going to seek government funding to help pay for this, but I imagine that could be a slow and potentially fruitless process to navigate.

We are prepared to do whatever we have to do to pay for this treatment, but if you’re able to help financially, know that it is literally saving my life, and your money is not being wasted. Every dollar from this fund raiser goes directly to the cost of the immunotherapy medications.

For those who have helped so far, and those who will continue to help, thank you, thank you, thank you! This unprecedented progress is a direct result of your support. You are literally heroic to me.

From my family to you, we thank you, we love you. You are right there with us, and it has made all the difference.

Dave, Rachel, Olivia