Welcome!

In 2006, at just 18 years old, I was diagnosed with an ultra-rare cancer called Alveolar Soft Part Sarcoma (ASPS). I was told that if the cancer ever spread, I’d likely have about five years to live.

Well—it did spread. And I’m still here. Still fighting. Still thriving—though not without scars.

Life has been anything but easy. I’ve had multiple surgeries, so much radiation I should be glowing, and tried several systemic therapies with no success. My cancer is everywhere—bones, organs, limbs, even my brain. My body is fragile and beaten, but I keep going. I live anyway.

I want to help others face their own cancer battles, to leave a positive mark wherever I can, to make lasting memories, and to watch my daughter grow up. That’s what keeps me moving forward—no matter how hard it gets.

I created this website to share my journey—not just the medical milestones, but the emotional rollercoaster that comes with living with a rare cancer. Whether you’re facing ASPS yourself, supporting someone who is, or simply curious to learn more, I hope what you find here informs, inspires, and maybe even comforts you. Nothing on this website should be considered medical advice. Everyone’s situation is unique and requires a proper medical assessment. Always seek guidance from your medical oncologist.

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What's on this site

  • News – Interviews, media features, and video updates. (Account required)
  • Story – A detailed, personal autobiography that takes you through my experience, from diagnosis to today. (Account required)
  • Tx - Current treatment plan. (Account required)
  • Timeline – A high-level, chronological overview of the key moments—diagnosis, treatments, scans, and setbacks. (Account required)
  • Scars - Images of the tumours, surgeries, radiation damage, and physical toll that nineteen-plus years of cancer has left on my body.(Account required)
  • References – A list of ASPS-related resources and explanations of terms I use throughout the site. Open to all.
  • Privacy Policy – A mutual respect for privacy—yours and mine. Open to all.

Some pages are private and require an account—this is just my way of protecting my personal story while still making it available to those who genuinely want to learn more. If that’s you, I’d be happy to create an account for you. Just follow the link above to register. I will get a notification of your request and make an account for you as soon as possible.

Thanks for stopping by. I’m glad you’re here.

Dave