Welcome!

In 2006, at just 18 years old, I was diagnosed with an ultra-rare cancer called Alveolar Soft Part Sarcoma (ASPS). I was told that if the cancer ever spread, I’d likely have about five years to live.

Well—it did spread. And I’m still here. Still fighting. Still thriving—though not without scars.

Life has been anything but easy. I’ve had multiple surgeries, so much radiation I should be glowing, and tried nearly every systemic therapy available. My cancer is everywhere—bones, organs, limbs, even my brain. My body is fragile and beaten, but I keep going. I live anyway.

I want to help others face their own cancer battles, to leave a positive mark wherever I can, to make lasting memories, and to watch my daughter grow up. That’s what keeps me moving forward—no matter how hard it gets.

I created this website to share my journey—not just the medical milestones, but the emotional rollercoaster that comes with living with a rare cancer. Whether you’re facing ASPS yourself, supporting someone who is, or simply curious to learn more, I hope what you find here informs, inspires, and maybe even comforts you.

Here’s what you’ll find on the site:

• News – Interviews, media features, and video updates. Open to everyone.
• Story – A detailed, personal autobiography that takes you through my experience, from diagnosis to today. Requires an account to view.
• Timeline – A high-level, chronological overview of the key moments—diagnosis, treatments, scans, and setbacks. Also requires an account.
• References – A list of ASPS-related resources and explanations of terms I use throughout the site. Open to all.
• Privacy Policy – A mutual respect for privacy—yours and mine. Open to all.

Some pages are private and require a free account—this is just my way of protecting my personal story while still making it available to those who genuinely want to learn more. If that’s you, I’d be happy to create an account for you. Just follow the link above to register.

Thanks for stopping by. I’m glad you’re here.

Dave